Posts Tagged ‘enfermedades raras’

Thursday January 24th, 2013

New Key players against Rare Diseases presented at the F.C. Barcelona’s stadium

A multi-million Euro initiative is bringing together researchers from across the world to develop new diagnostic tools and new treatments for people with rare diseases and to connect research data in this area on a global scale. Rare diseases – while individually uncommon – affect one person in every 17 and 80% have a genetic component. Today, the EU has announced 38 million Euro funding for research towards new treatments and for the development of a central global rare disease hub involving 70 institutions that will allow scientists to share data from their genomics research projects. Dr. Joan Lluis Vives-Corrons, a physician from IDIBAPS-Hospital Clínic and coordinator of ENERCA, is an associated partner of one of those projects.

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Monday February 28th, 2011

New ENERCA website launched

enerca22The new ENERCA website (European Reference Network for Rare and Congenital Anaemias) is completely accessible on-line at since 28th Monday February 2011. The ENERCA website is aimed at Health Professionals who are interested in rare anaemias and also to patients affected with one of these diseases.

The launching of the new ENERCA website coincides with the celebration of the International Rare Diseases Day, which happens to be a nice contribution to the dissemination of the rare diseases knowledge in the field of rare anaemias.

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