Posts Tagged ‘anemias raras’


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Monday February 28th, 2011

New ENERCA website launched

enerca22The new ENERCA website (European Reference Network for Rare and Congenital Anaemias) is completely accessible on-line at since 28th Monday February 2011. The ENERCA website is aimed at Health Professionals who are interested in rare anaemias and also to patients affected with one of these diseases.

The launching of the new ENERCA website coincides with the celebration of the International Rare Diseases Day, which happens to be a nice contribution to the dissemination of the rare diseases knowledge in the field of rare anaemias.

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Friday November 19th, 2010

Spain is leading the fight against rare anemias in Europe

Antoni Montserrat, Joan Lluís Vives-Corrons, Antonio Cerrato i Pilar Aguilar-Martínez

It is estimated that rare diseases -those whose frequency is under 5 cases / 10,000 people- affect about 6% of the European population. In the field of anemia, 1% of couples are at risk of having a newborn with a severe syndrome of hemoglobin. More than 330,000 children are born worldwide each year affected by one of these diseases, being the most common disorders sickle cell anemia and thalassemia syndromes. In Spain, the average risk of having a newborn with a rare or unusual anemia is being increased due to African immigration. However, Spain is working on that issue and is the fifth of the 27 member countries that has developed a Strategic plan for rare diseases. It has been emphasized by European Commission sources during the 3rd European Symposium organized by ENERCA at the Cosmocaixa Madrid.

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